Normales Thema The Power of Sharing Our Journey with EEC Syndrome (Gelesen: 734 mal)
Iris U.
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The Power of Sharing Our Journey with EEC Syndrome
26.05.2017 um 21:05:16
An NFED dad and self-described introvert finds the strength in being vulnerable and the power that comes from sharing your story. He and his family share how they are facing his son's challenges with ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome and using it as an opportunity to raise awareness and funds.

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